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[–] 49 points 2 months ago (11 children)

Knowing and relating to all these things but not having the $3000+ to actually get diagnosed.

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  • [–] 19 points 2 months ago* (last edited 2 months ago) (9 children)

    It cost my boyfriend $652 for the diagnosis, not including medication. That's with health insurance in the USA. It's a lot of money, but at least it wasn't in the thousands.

    Edit: I'm sorry everyone. I thought I was in the ADHD topic. Didn't mean to give out misinformation.

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  • [–] 14 points 2 months ago (6 children)

    Gawd fuckin dammit. Imagine healthcare in the US being better then in Canada in any way lol.

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  • [–] 6 points 2 months ago (5 children)

    Where are you? There's likely assessment resources available that aren't private but not "advertised" as it were.

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  • [–] 6 points 2 months ago (4 children)

    It varies wildly province to province how long the waiting list is when you go the publc route as an adult. Could be months to multiple years.

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  • [–] -1 points 2 months ago (3 children)
  • [–] 0 points 2 months ago (2 children)
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    [–] 34 points 2 months ago (4 children)

    Serious question, that isn’t what people normally do?

    How do you function if you don’t think about such things.

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  • [–] 23 points 2 months ago* (last edited 2 months ago) (1 child)

    It's the self diagnostics favorite past time. Lots of people will take a "self care" day after a social events. Lots of people will rehearse social interactions especially if they're important. And lots of people take extra time to make themselves "presentable" before leaving the house.

    It begs the question: What does it mean to be autistic? We diagnose autism based on a constellation of symptoms only when those symptoms make it difficult to function in society (which is an arbitrary line). You can describe lots of non-autistic human behaviors as autistic because it's all on a spectrum. But you can also describe a lot of non-sociopathic human behaviors as sociopathic, I don't think it means you have symptoms of late-diagnosis sociopathy.

    I guess what I'm saying is that posts like these and the general attitude it represents irks me a lot. Imo it's really really harmful to say to autistic people: "normal people don't need a day off after social events." Some do, some don't. It doesn't make you a diagnosable pariah to have this need. If you are autistic it means that your tendency to get overwhelmed by social events is so severe that it interferes with your general life and well-being. That's it. (And of course the same applies for the other two symptoms described in the post)

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  • [–] 24 points 2 months ago (2 children)

    Not autism, but ADHD here, and pretty much all those symptoms.

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  • [–] 6 points 2 months ago (1 child)

    You may have both.

    Between 50% and 70% of autistic people also have an attention-deficit/hyperactivity disorder diagnosis

    https://health.clevelandclinic.org/adhd-vs-autism

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  • [–] 7 points 2 months ago* (last edited 2 months ago)

    Oh I’ve been tested, lol.

    Also, further down in that article it says about 13% of children diagnosed with ADHD also have a diagnosis of ASD. Which is higher than I expected, but not as strong an association as the other way around. I just thought that was interesting.

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  • [–] 24 points 2 months ago (2 children)
  • [–] 21 points 2 months ago (7 children)

    Kinda disappointing. Like the therapist saying or more like confirming you're on the spectrum was kinda redundant. Yeah sure, ok. Now what?

    I'm still going to have to use all the compensatory methods. I'm still going to have to do all the social and emotional side manually. Like dafuq did i throw my money at you, no offense to the therapist.

    Brain implants don't exist yet to fix or aid with my issues. Neither can we do any surgery to rewire the brain. I'm going to go out of this office and still have to deal with the same issues. What was the point even?

    Yeah this did kinda put me off of therapy for the foreseeable future. Way too much like shooting in the dark to justify the resources it takes, time and money. So at least it did something.

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  • [–] 18 points 2 months ago (3 children)

    Confirmation is one step in being able to solve / correct behavior and build workarounds.

    Acceptance is a big step for a lot of people, as is the feeling of solidarity.

    Now they know what to research for "life-hacks" on how to interact with and live within the world that isn't designed for people like us.

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  • [–] 9 points 2 months ago (1 child)

    And it can help rewrite the techniques you have built to function in society (‘masking’) towards something more comfortable and less energy consuming.

    A friend of mine got diagnosed in her 20s, when she went in burnout and couldn’t get over it because any social situation was overwhelming. Learning methods to handle social situations -less masking, more awareness of her limits, searching for clearer boundaries and much more I am not privy to- helped her tremendously and she is blossoming.

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  • [–] 4 points 2 months ago

    I can’t imagine not masking at work. It’s so ingrained that I don’t know what “not masking” in a professional setting would even look like. When I’m alone I don’t mask, obviously, but when I’m alone I’m also not talking to anyone. So there’s no facial expression or tone of voice to monitor.

    I’ve had way, way too many bad experiences related to not masking. Too much punishment, too many baseless accusations, too many authority figures confusing flat tones of voice with “sarcasm” or “rudeness.” The idea of not masking in a professional setting is as scary as showing up to work naked.

    It’s cool that some people are finding ways to reduce masking, but I can’t fathom what I could do instead. From what I’ve experienced, the world still isn’t ready for full autism acceptance.

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  • [–] 3 points 2 months ago

    Completely fair and I'm not denying it's overall usefulness. Way too many people have found it helpful to deny it.

    I just got diagnosed late enough that i already had developed most of the necessary compensatory methods to deal with my day to day life.

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  • [–] 3 points 2 months ago

    I'm in my 40s. I got my ADHD diagnosis this year. For me, it was validation, and was worth the money I spent on it to be able to say: "Yes, my brain has trouble with these things and I have to work differently than others."

    I imagine it's the same for ASD. Having someone else confirm you struggle with certain things is, in its own way, empowering.

    I don't know that "Therapy" therapy, or even medication, is always necessary afterwards. I don't plan to get meds for my ADHD, or get regular therapy sessions. I developed my own coping strategies and I've been fine for years and years; if I had been failing to hold a job or relationship, then therapy might be helpful to teach me strategies. The desire for me was to have someone else, who has training and knowledge more than my WebMD queries, tell me that I am correct in understanding my own body and everyone else is weird.

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  • [–] 3 points 2 months ago (1 child)

    I still find therapy useful as an ASD adult. However, it certainly costs a lot and if you cannot spare the cash I totally get it. I get mine partly funded by the Australian government. I am genuinely grateful to the taxpayers for this privilege.

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  • [–] 2 points 2 months ago* (last edited 2 months ago)

    Yeah the time and money cost associated with it are the biggest factors in making it less worth than its helping, even though I'm not in US. Local healthcare system is just barely functioning and US style private healtcare system has emerged.

    Being cheaper and more accessible would most definitely put less pressure on it to justify its cost.

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  • [–] 8 points 2 months ago

    Shit, I feel attacked.

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  • [–] 5 points 2 months ago*

    "Oh don't worry, you're just a little introverted, there's nothing wrong with that"

    /s just in case, it's what they all told me

    but man, fixating on computers in the 90's was a hot ticket

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  • [–] 4 points 2 months ago

    Interesting...

    I definitely used to obsess over things I had said, and how I could or would say them differently or better. As a kid. That's not.. Normal?

    These days I'll still cringe over things I said, or have conversations in my head as I drive, planning what I'll say and how they'll react etc, but it's no longer obsessive. Or at least I'm good at redirecting my thoughts and distracting myself so I'm not worrying about it anymore. Which sometimes leads to its own problems, forgetting to have conversations, misremembering my practice as the conversation actually having happened.

    Same with text messages, if I read it, I'll think of how to respond, but often forget to actually.. You know.. respond.

    These are not normal things that everyone does?

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  • [–] 3 points 2 months ago

    That’s just my life in general. I’d rather just not know if I’m on the spectrum or not. I can function just fine in society with or without it

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  • [–] 5 points 2 months ago (1 child)

    Then other people with autism, ADHD, etc. start describing your exact experiences and you're like huh oddly specific but okay probably doesn't mean anything

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  • [–] 2 points 2 months ago*

    "Nah, I'm just really, really introverted... Like more than anybody I've ever met, kind of turbo-charged introverted, but that's all it is. That and I'm just completely defective as a person, so that's why nobody will be my friend."

    -Me, 2016

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  • [–] 1 point 2 months ago

    "You're just like everyone else, why can't you just be normal?!"

    Yeah, fuck you very much Dad.

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  • [–] 1 point 2 months ago

    In my case, the screeners all came up deeply ASD, but it ended up that I have OCD+need for perfection instead. Different cause, very similar presentation in a lot of ways.

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