We have a lot of health records in the family, often just for monitoring health as we grow older. Is there a good system that allow storing and organising this info. Maybe also allowing notes, reminders?

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[–] 8 points 1 year ago

I too am interested in an automated system taking data from things like smart rings/watches, ideally with home assistant integration. Do you mean like basic note taking? something like Joplin could be used for that. I use it extensively. It has a to do checkbox function, which you could use as a reminder, though it doesn't pop up. You'd have to look at it. I think for reminders etc. you'd perhaps be looking at calendar software, perhaps next cloud, which also includes notes.

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  • [–] 7 points 1 year ago

    Components of GNU Health, perhaps?

    There's this, even

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  • [–] 5 points 1 year ago* (last edited 1 year ago)

    Nextcloud Health?

    Edit: Appears not not do the job after a dig. Maybe Gadgetbridge (if you're pulling in fitness trackers)>Influx?

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  • [–] 9 points 1 year ago (2 children)

    I have no experience with it, but this promises local storage of health records: https://github.com/fastenhealth/fasten-onprem

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  • [–] 3 points 1 year ago (1 child)

    Fetched it. Started it. Did a really nice job fetching my whole health record from insurance co & has a wide array of compatible providers. Decent presentation of repeated test results. It's got a bunch of areas "not implemented yet," but it's a decent way to visualize the records. Probably even better if you have health records from multiple providers.

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  • [–] 1 point 6 months ago (2 children)

    I am there right now, tried every open source project about health records, they all either suck or just not appropriate for personal use (ie meant for hospital use)

    Recently a new project came out and it is the only one that is actually usable, and will possibly get really good.

    You should try all the options for your self:

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  • [–] 1 point 6 months ago* (last edited 6 months ago) (1 child)

    Thanks for the list. I too have been investigating PHRs (Personal Health Records), and I am glad to see more and more interest in this space.

    MediKeep looks interesting, and hopefully we'll see connections with some of the major EHRs, so we can import our data.

    My dream is to be able to import my data, modify it, then send out changes back to my providers. I am shocked at how much out of date or wrong information is in my records from my primary care!

    Some more to add to the list:

    • Mere Medical - This is a PWA with no server component, which is kinda cool, although that meant synchronizing between devices does really exist. It was able to import from my Primary Care which uses Cerner (although I had to register as a developer with Cerner to get an API key), however, it couldn't do very many useful things with the data. Having a bunch of "documents" wasn't that helpful
    • GNUHealth - seems dead
    • Kailona - I haven't tried this yet. Seems a bit complicated, and looks like you have to set up your own FHIR Server?
    • Medplum - I haven't done much investigation yet. It doesn't seem to be a PHR, but maybe something to build on?
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  • [–] 0 points 1 year ago* (last edited 1 year ago)

    Paper notebook for each person, really the simplest, unless you have continuous monitoring or something uploading data automatically. Otherwise, for stuff like weight and BP, the actual measurements are the main hassle and computers won't save you any time compared to that.

    Added: for pills, timercap.com bottle caps are brilliant. They have an LCD display saying how it has been since the cap was last taken off the bottle. It eliminates the problem of forgetting whether you have already taken your pill.

    Otherwise, generally, as always: https://biggaybunny.tumblr.com/post/166787080920/tech-enthusiasts-everything-in-my-house-is-wired

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  • [–] 1 point 1 year ago (3 children)

    A friend of mine is building something like that. You scan all the documents and you can set reminders, it does summaries and proposes actions and a buck of other really neat stuff It's ai. I think it's a good use case. But the ai means it has to call a server with the information, so I can't get past that.

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  • [–] 4 points 1 year ago (1 child)

    But the ai means it has to call a server with the information, so I can't get past that.

    That just means they need to ship the model and a way to run it locally. I'd love that, and wouldn't give a shit if it took a long time to run on my hardware for something like that

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  • [–] -1 points 1 year ago

    You could build your own spreadsheet using LibreOffice Spreadsheets.

    I've been meaning to do it because my diet doesn't change much, and it would just be easier to track it myself.

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