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Getting old and would like a better way to track health the self hosted way (lemmy.ml)
submitted 1 year ago by to c/selfhosted@lemmy.world
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We have a lot of health records in the family, often just for monitoring health as we grow older. Is there a good system that allow storing and organising this info. Maybe also allowing notes, reminders?

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[–] 1 point 6 months ago (2 children)

I am there right now, tried every open source project about health records, they all either suck or just not appropriate for personal use (ie meant for hospital use)

Recently a new project came out and it is the only one that is actually usable, and will possibly get really good.

You should try all the options for your self:

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  • [–] 1 point 6 months ago* (last edited 6 months ago) (1 child)

    Thanks for the list. I too have been investigating PHRs (Personal Health Records), and I am glad to see more and more interest in this space.

    MediKeep looks interesting, and hopefully we'll see connections with some of the major EHRs, so we can import our data.

    My dream is to be able to import my data, modify it, then send out changes back to my providers. I am shocked at how much out of date or wrong information is in my records from my primary care!

    Some more to add to the list:

    • Mere Medical - This is a PWA with no server component, which is kinda cool, although that meant synchronizing between devices does really exist. It was able to import from my Primary Care which uses Cerner (although I had to register as a developer with Cerner to get an API key), however, it couldn't do very many useful things with the data. Having a bunch of "documents" wasn't that helpful
    • GNUHealth - seems dead
    • Kailona - I haven't tried this yet. Seems a bit complicated, and looks like you have to set up your own FHIR Server?
    • Medplum - I haven't done much investigation yet. It doesn't seem to be a PHR, but maybe something to build on?
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