Muse maker Interaxon reportedly trained AI on users’ de-identified brainwave data, then revised its privacy policy after journalists asked questions.

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[–] 21 points 1 day ago (1 child)

Not to let this company off the hook for their poor disclosure but just assume all data is being stolen from you the second you open a door. Even if a company seems legit they have a dozen sketchy vendors handling your data. If you don't like it you don't buy this ridiculous, gimmicky shit. It's bad enough we have to submit to these practices to use the dentist or the grocery store. You don't have to invite it into your life for some gewgaw that should be sold next to whoopie cushions and x-ray specs.

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  • [–] 6 points 1 day ago

    I was doing research the other day for my job and it involved all those data broker removal tools. One of them is by incogni and it’s supposedly “better”. They claimed all your data stayed in America except if you checked their JavaScript was literally sending data straight to an analytics company based in Europe.

    A different data removal tool called easy opt out on the other hand loaded zero JavaScript at all (or at least third party JavaScript) and had actual security claims on their site. But they haven’t done any audits so don’t trust them either!!!

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  • [–] 4 points 21 hours ago

    Worth knowing for anyone who owns one: since 2024 Colorado and California both treat neural data as sensitive personal information under their privacy laws. In Colorado that means it needs opt-in consent; in California you can tell the company to limit its use to what's needed for the service. If you're in either state, a deletion or limit-use request that names the neural data specifically is the practical step, and "de-identified" brainwave data is a weak promise when the recordings are long and unique to each person.

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  • 37 comments in c/privacy@lemmy.ca view that post
    [–] 29 points 1 day ago

    We're getting closer and closer to that bit in Futurama where they beamed ads into your dreams.

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  • [–] 19 points 1 day ago
    [–] 16 points 1 day ago (1 child)

    People should probably start realising that Capitalism is completely incompatible with Privacy. ..and incompatible with 'freedom', and 'Democracy' and in general, incompatible with any type of nice world to live in, environment, bio diversity and so on.. Its not even necessary for 'innovation', 'incentives' or any of the other made up claims..

    Not sure why some people still support that harmful anti-scientific/ideological belief system, but I guess the Oligarchs constant propaganda and manufacturing consent has something to do with it. Oh well..

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  • [–] 2 points 19 hours ago

    You put it beautifully. Still most people have fallen in love with the golden idol of greed.

    I heard somewhe this: A lot of people believe they are one win away from being rich, while they are really two missed paychecks from being in the streets.

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  • [–] 67 points 1 day ago (7 children)

    Why anyone would connect a brainwave scanner to the internet and the wear for 8 hours every night it is beyond me. I've run out of sympathy. This is like slathering yourself in blood and jumping into a shark tank.

    At a certain point, personal accountability for your privacy has got to enter the conversation with normal people.

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  • [–] 67 points 1 day ago (2 children)

    I hear what you are putting out there but I can absolutely sympathize with the users. I suffer from chronic insomnia. My worst episode was when I go no more than 90 minutes of light sleep per 24 hour period for a stretch of about two months. It landed me in the hospital, on suicide watch, paranoid, and a lot more.

    Once sleep gets bad for long enough, you'd try anything.

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  • [–] 35 points 1 day ago (1 child)

    I stopped smoking weed to get a job in my late twenties and stopped sleeping more than 2 hours at a time for months.

    People who get sleep just don't know how bad it gets and how low the quality of life gets.

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  • [–] 8 points 1 day ago

    idk how people with insomnia keep it together. ive had some stretches of being unable to get to sleep, or having a really hard time getting to sleep, or waking up really easily, and i swear after a few days of that i was ready to commit a murder. lack of sleep makes me Crazy. idk how anyone could deal with that for months. my condolences.

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  • [–] 12 points 1 day ago

    You're correct, but it doesn't mean we should stop giving companies bad press when they fail to disclose data sharing like this. Shifting the blame to users only normalizes this behavior for companies offering these products

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  • [–] 21 points 1 day ago (1 child)

    What are "normal" people to you? Because usually that excludes the disabled and those with poor health, and those are the most vulnerable to health data privacy violations. You don't have to care about other people's privacy at all if you're so exasperated, but when your health fails you, and it will, you will also find yourself suddenly not so concerned with where your data is going as long as you can get the medical care you need.

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  • [–] -2 points 21 hours ago

    Hey ding-dong, the interaxon muse is NOT A MEDICAL DEVICE. You're acting like this is only product in its niche. Guess what? There are a million different snake-oil obvious scams for people to choose from in the medicinal pseudoscience field that don't connect to the internet.

    You should do even a single minute of research before scolding someone on something you clearly know very little about. This is not medical care. If it was medical care, it would be covered under HIPPA or whatever country's medical confidentiality laws.

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  • [–] 13 points 19 hours ago (4 children)

    'Muse' and 'Sleep' are both bands. This really confused me.

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  • [–] 10 points 1 day ago

    If it connects to the internet don't connect it to your body. Finger prints, face ID, blood sugar, brain waves, online DNA services.

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  • What does that even mean? If you're using the device as intended, it collects a few changing numbers while you're presumably laying in bed asleep. You can train a computer to be able to answer "If somebody is wearing a brain wave monitor and these are the readings, is that person asleep?" Maybe they can infer sleep quality? These types of scanner cannot tell what you are thinking.

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  • [–] 7 points 13 hours ago (1 child)
  • [–] 21 points 1 day ago (5 children)

    "Muse anal probe users weren't told that the collected data was used to train AI" - stop using Meta products, you dimwits.

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  • [–] 1 point 14 hours ago (2 children)

    Company known for creepy unethical practices creates new product no one wants for even creepier and even less ethical practices.

    Seriously, i couldn't care less if it was the most magnificant product in the world. If its from zuc the cuck I'll skip it.

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  • [–] 5 points 1 day ago

    I honestly don't know what they expected. Or why they'd pay money for the thing in the first place.

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  • [–] 5 points 1 day ago

    Same shit that Oura ring wearers or people who upload exercise or sleep data are doing, but scarier. F this.

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  • [–] 5 points 11 hours ago

    Muse are a band. I will never not think of the band. It's a stupid name for AI

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  • [–] 4 points 9 hours ago

    At this point, assume anything associated with the company called "meta", "Facebook", or other related properties, and anything relating to their AI "Muse" is probably harvesting your data to train AI, or it is being sold to third parties for advertisements.

    The service is "free" because you are the product being sold. They don't charge the trees for taking their apples.

    Also, assume anything to do with "AI" or any company that has their own "AI", as well as anything publicly accessible on the Internet, is being used as training data.

    Be sure to interject white text on a white background of poison training data. People won't see it, and AI will get so fucked up in the long run.

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  • [–] 4 points 1 hour ago

    Muse sleepband?

    Oh yah, this can't possibly cause problems

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  • [–] 2 points 1 day ago

    black mirror irl

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  • [–] 2 points 1 day ago

    "de-identified"... Right

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  • [–] -3 points 16 hours ago (2 children)

    Like people aren't wearing smart watches or generally using smart phones and laptops. It's a bit naïve to think we haven't already added our data into companies

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