Isn't it strange how we discovered a lot more stars after inventing telescopes?
Obviously there was an unrelated increase in stars born at that exact time.
Isn't it strange how we discovered a lot more stars after inventing telescopes?
Obviously there was an unrelated increase in stars born at that exact time.
My cousin was diagnosed by a brain scan. She signed up to be part of a clinical trial for something else, got kicked out of the trial because her fMRI showed she had ADHD.
So if we can literally scan someone's brain and diagnose them from a picture instead of all these vague "describe your symptom" guessing... why don't we?
It's quite costly to run an fMRI. Not needed if you can get the same results more or less from a questionnaire.
In my professional experience, it can be hard to tell between ADHD symptoms and CPTSD symptoms. The checklist is not a great way to diagnose people. We usually do a lot more assessments, I also use a computerized test to measure reaction time and error commission.
I wish we (therapists) at least had the option to order an MRI or recommend a doctor orders one in difficult cases (I can do the latter but they will just laugh at me).
Do you know if there any studies on whether the effects of the medicine used for ADHD could have similar positive effects on people with CPTSD?
Great question! To my knowledge, they are just starting to look into it, but with PTSD specifically, not CPTSD. There is this case study (n=1) and this pilot study (n=32) that show promise. They are recruiting people for more testing.
Preliminary evidence shows that it does help - and it makes sense. If cognitive deficits from PTSD are a result of an impaired executive function, then stimulants would help with those particular symptoms, much like in ADHD.
Here's the thing though - the US healthcare system still doesn't even have CPTSD as a diagnosis, so there is not too much research happening on the topic here. Considering how ADHD (especially in women) is also very understudied, there are so many variables we just don't know or understand.
If you are interested in novel treatments of PTSD, I also recommend looking into blue light therapy. There is some promising results showing a reduction in symptom severity within 6 weeks of daily 30-min blue light exposure in the morning. Here is a systematic review that looks at 4 studies.
Aren't a lot of ADHD (and autism) symptoms trauma responses because of being different , especially the social stuff?
I wish we (therapists) at least had the option to order an MRI or recommend a doctor orders one in difficult cases (I can do the latter but they will just laugh at me).
God, that's awful. The most common sense thing to do there is is to use what's availiable (fMRI) when it is, and if availability is the problem, fill the gaps with questionnaires - those who you're sure about might not need an fMRI, but others might. Which you, as a person who's supposed to sign off on the diagnosis, should be able to order.
Ya, it could be better. Maybe a compromise would be to go with EEG machines which are less costly and can probably still differentiate fairly well (maybe).
I prefer objective, unqestionable evidence, since I tend to self-sabotage I guess.
It's also worth noting that ADHD, as a condition, is mostly a Gordian knot of maladaptations. Built up over childhood (and beyond). While there are a lot of commonalities, you need to do a detailed investigation to pick out what bits are a problem to the individual.
If you're going to go through that process, then you might as well not tie up an MRI machine for no reason.
Drugs can treat the base problem, but don't work well without the follow-up care to repair the behavioural damage.
You can't get diagnosed with an fmri alone. It's just one sign, a weak one, so you'd need the professional doing questionnaires anyways. They are way cheaper and faster (in terms of waiting times) than fmris too. Might as well skip it.
An mri would kill me because my diet includes a tablespoon of 2mm iron pellets daily.
I spent most of my life undiagnosed, because it used to be believed that only boys could have ADHD. But I knew, and was formally diagnosed as an adult only at the insistence of my partner.
Like many adults I just got recently diagnosed in my mid 30s.
For me it was that I can't have adhd because I was good at school and uni. Then I completely fell apart when I entered work.
I had to go through depression and burn out and bore out and more. Eventually someone said I could have adhd and just been able to deal due to high IQ.
Turns out that's what it was. I'm really good at learning new stuff. So school and uni. I really suck at repeating the same shit all day. So work. Welp. Helps to know.
Wow, this could have been written by me. I got diagnosed last year in my early 50s after my 4th burnout. I'm currently assessing career options and try to work out what to do next. Unfortunately one has to make money to survive, I'm just trying to find something that won't break me again. Bonus points if it's interesting too.
This is where I am too, in my late 30s. Had a really bad year last year reaching burn out and ending up with panic disorder 😵 I wonder if changing to a job that's more systematic would help, but also the boredom kills me and I need money. I hope you figure it out!
Huh, never conceived of it that way. I was stellar in secondary school, burnt out in university and crashed out in post-grad plans/attempts. Still trying to revisit those, but have to go at a slower pace.
I've felt like my brain just works... slowly. But I also seem to be pretty good at learning/picking up new things, because the novelty is key. That is definitely a helpful way to reframe it!
To my understanding it shows up differently in women. What were your symptoms? Also some women get diagnosed with it during perimenopause.
All of this applies to Autism, as well.
Indeed and I still don't get my diagnosis because I can look people in the eyes and am friendly.
(yes, some 'expert' actually said that as a paid diagnosis. This is supposed to be first world but hey... Nobody gives a fuck)
Ugh I’m sorry to hear that, it can be incredibly frustrating and discouraging to seek a professional just to have them dismiss and misdiagnose you.
I wish you the best in your journey to get the answers and help you need and deserve. Please keep looking, the right fit has to be out there.
Thanks! I found most of the answers on my own and all situations in the past I was puzzled about my own behavior ist perfectly clear to me now (esp. reactions due to overload situations and masking).
I actually have no direct use for the diagnosis; it would only be the last confirmation, taking a huge load off my shoulders and providing that last bit of rest. However, I myself and my surroundings don't need the approval to know.
It’s almost as if we’ve gotten better at understanding the condition overall and in nuance.
Most data suggests it is under diagnosed.
From the linked research article:
‘Over-diagnosis’ is observed when the prevalence of diagnoses made in clinical services, referred to as administrative prevalence (based on healthcare databases or insurance claims) exceeds prevalence estimates based on accurate assessments in representative population-based samples. Over-diagnosis may occur when diagnostic criteria are not applied with sufficient rigour, leading to false-positive cases. Over-diagnosis may also happen when people inappropriately self-diagnose. Notably, for individuals with milder or subclinical symptoms, a diagnosis can sometimes do more harm than good, creating stigma or leading to low-benefit treatments with significant side-effects.
So is Admin Prevalence > Prevalence Estimates where the estimates are made based on representative population-based samples?
I was diagnosed in my late 50's. It was a complicated process because there is another mental health co-morbidity that shares some traits.
After going through the more than a year long process, we are working on dialing in the meds.
One of the challenges for diagnosis is that the attention economy is shortening a lot of people's attention span, causing many people to feel that they have ADHD, and diverting resources from diagnosing people who actually have ADHD. Not saying that the issue shouldn't be addressed. The combination of these factors, and the rather long and complicated process of a proper diagnosis is a challenge.
Was it worth it at 50? How it been going?
The moral panic of overdiagnosis comes from conservatism's obsession with hypernormalcy. Basically unless your really-really failed to be normal, you're not allowed to stray from it, and even then, it would be good if you were normal, because they like the virtue of normalcy, and also thinking is hard, and also also change is bad.
Yes this explains modern transphobia a lot. Some admitted, that it has to be "all undone", because people stopped trying to be normal first and foremost. This also partly explains gatekeeping in fandoms.
Any diagnosis means someone might demand something of them. It might be consideration, tax money, or some other inconvenience like actually having to apply thought and accommodation to anyone not fitting their idea of conformity. I agree with where you’re pointed, but it isn’t a “moral panic”, it’s their unwillingness to expend anything of themselves for others.
This thread somehow brought out some of the most misinformed, boomer-brain takes imaginable and comes dangerously close to anti-intellectualism. We can all agree that labels can be reductive and unhelpful, but as someone with a neurological disability, seeing people debate whether a disorder that makes it incredibly hard to enjoy my life is even real or not is fucking horrible.
Well you're a severe case, and these people likely are talking about mild cases.
This is goal post moving bullshit.
Why, there should be varying degrees when it comes to over prescription. Like opioids, I'm sure some people need them for good reason, but they were over prescribed.
Because the people making the claim that ADHD is overdiagnosed and medication is overprescribed are not only talking about mild cases. Then when someone with a good point comes along, suddenly we are only talking about mild cases.
So, moving goal posts.
It doesn't matter how mild or serious you have ADHD. If you need treatment there shouldn't be a boomer shaped barrier in the way making it seem like it isn't real.
That doesn't matter; that kind of 'criticism' ends up stigmatizing medication altogether, even for whom it can be lifesaving.
I'm just sick of being unmedicated because there's always a shortage of medicine or my insurance wants to be a fuck nugget. I can't even function properly without mine and have severe anxiety over losing my job because of this shit. Fuck American healthcare, fuck insurance companies.
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