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[–] 3 points 1 month ago (6 children)

no thanks, i'll leave making lies up to all y'all

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  • [–] 1 point 1 month ago

    i’ll leave making lies up to all y’all

    Orphan drugs cost millions per patient, sorry your ignorant, but this is reality, y'all:

    Skyclarys (omaveloxolone) has a wholesale list price of approximately $370,000 to $399,180 per year

    Zolgensma has a US list price of about $2.1 million for a single, one-time treatment.

    Lenmeldy – $4.25 million (Metachromatic leukodystrophy)

    Kebilidi – $3.95 million (AADC deficiency)

    Hemgenix – $3.5 million (Hemophilia B)

    Elevidys – $3.2 million (Duchenne muscular dystrophy)

    Lyfgenia – $3.1 million (Sickle cell disease)

    Skysona – $3.0 million (X-linked adrenoleukodystrophy)Zynteglo – $2.8 million (Transfusion-dependent beta thalassemia)

    – ~$1.51M to $1.56 million per year (Generalized lipodystrophy)

    Danyelza – ~$1.39M to $1.44 million per year (High-risk neuroblastoma)

    Zokinvy – ~$1.30M to $1.44 million per year (Hutchinson-Gilford Progeria Syndrome)

    Miplyffa – ~$1.30 million per year (Niemann-Pick disease type C)

    Kimmtrak – ~$1.17 million per year (Metastatic uveal melanoma)

    Folotyn – ~$1.01 million per year (Peripheral T-cell lymphoma)

    Demser – ~$960k to $1.20 million per year (Pheochromocytoma)

    Brineura – ~$916k to $1.02 million per year (CLN2 Batten disease)

    Spinraza – ~$900,000 for the first year, then ~$450,000 annually after (Spinal muscular atrophy)

    Blincyto – ~$905,000 per year (Acute lymphoblastic leukemia)Ravicti – ~$695,970 per year (Urea cycle disorders)

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  • [–] 1 point 1 month ago (4 children)

    I am on a drug that the pharmaceutical bills insurance $500,000 per month for called Strensiq. This is not a lie, I have the EOBs.

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  • [–] 3 points 1 month ago* (2 children)

    and what does insurance actually pay from that 500k?

    i have more medical debt than probably all of you. i was running up millions of dollars worth of charges every month.

    the insurance did not pay millions of dollars every month.

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  • [–] 2 points 1 month ago (1 child)

    Considering the copay is 20%, probably most of it. If not, they're sticking the insured with a far higher percentage of the cost than agreed on. Granted, I also get copay assistance so I don't actually pay $100,000 per month. But Strensiq really does cost millions per year per patient at this time.

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