That good 95% in a old milk bottle with a post it note for a label.

Thanks, I've only known about the chronic fatigue part of ME since the trial I'm involved in also has some ME patients trialing the same meds.

Edit: reading again i think their was a small miscommunication, I don't have MECFS, just something with similar symptoms so I know the feeling.

The experimental meds are basically anything they gave someone for another reason which also seemed to have a positive effect on their daily energy levels.

So far I've tried: low dose naltrexon, mestinon and low dose aripiprazole. The first two had only negative effects while the last gives me a few more hours that I'm awake per day. From sleeping 20 hours in the worst case to about 12-16, I still can't do shit but at least I'm awake.

As someone with chronic fatigue due to long covid i can relate to this hard. I only had to wait 2 years to start with some experimental meds tho so not all is bad.

But the day you find a specialist that immediately gets you is glorious, just hope there is medication/treatment for it tho.

Game right screen, left screen is vertical since it's mostly for text based things.

The accompanying song is a banger