Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for healthy people to share their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 2 years ago

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mecfs@lemmy.world

graphito@sopuli.xyz

FundMECFSResearch@lemmy.blahaj.zone

ShareMySims@sh.itjust.works

ShareMySims@lemmy.dbzer0.com

More Funding for Psychosomatic ME Research in Norway, While Promising Biomedical Trials Go Unfunded (www.change.org)

submitted 8 months ago by bjoern_tantau@swg-empire.de to c/chronicillness@lemmy.world

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This is an automated archive made by the Lemmit Bot.

The original was posted on /r/cfs by /u/anonym5088 on 2026-02-21 10:22:35+00:00.

It’s concerning that Wyller, a Norwegian pediatrician and ME/CFS researcher known for promoting a psychosomatic understanding of the illness, has received additional funding for psychosomatic research, including mind body reprocessing therapy.

At the same time, the Haukeland team studying daratumumab has received no direct government funding. Their pilot study showed promising results, and a new trial is now underway, largely funded by patients and their families.

That contrast speaks volumes about current research priorities.

ME/CFS patients deserve serious investment in biomedical research and potential disease modifying treatments. If you agree, please consider signing and sharing this campaign to help secure proper funding for the daratumumab study.

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[–] Dragomus@lemmy.world 4 points 8 months ago

Ah, the (internationally widespread) corruption of decades ago is still on a repeat course.
Vague figures keep popping up again and again to lay claim on funds earmarked for solid and proven research only to divert the money to vague psychosomatic control programs that only serve to enrich those enforcing the non proven programs upon patients. That side still attempts frantically to ignore evidence of covid-19 overlapping simarities with ME/CFS

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