I have been going a bit crazy with this for about 20 years now. I am not yet 40, for reference. So I was nearly killed in a SA around the time that this started and I do have TBI from that, but I have in the last five years really been pushing my doctors to help me with this.

I've been through two years of pelvic floor training, which didn't help or hinder the issue. I've logged the times when I needed to change my lower half clothing and there's no pattern. I've tried a pessary and anti-perspirant around my groin and upper thighs, but still need to change my clothing after a few hours outside running errands or just existing in the world. I have tried those sweatproof/leak proof undies but they aren't enough.

Earlier this year I had an mri of my pelvic region and it was unremarkable. That was preceded by ultrasounds before and after voiding my bladder and I'm not retaining anything. Very recently I had an mri of my spine and they found I have a few lumbar fractures that have healed, as well as too narrow of a space for the nerves. More physical therapy, but still no change (although at least I can walk reliably again!)

Fellow Femfolk, please help me out with suggestions. I'm so tired of bringing towels and extra sets of clothing with me just to hang out with friends or see a concert

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[–] 4 points 1 week ago (1 child)

I have no actual advice regarding the symptoms you're experiencing - but I absolutely and completely suggest doing everything in your power to see someone outside of the VA.

Anecdotally, I've been going through my VA for something entirely different and them not knowing how to treat younger women or listen to them has cost my health significantly. Please try to get out of the thumb of the VA if possible.

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  • [–] [S] 3 points 1 week ago*

    You are right. It is exhausting trying to help my doctors figure out what is wrong while also fighting "this is just ptsd", or "this is your new normal" cop-outs.

    I am going to let a few things run their course. But since I don't plan on staying in this city, there will be a natural case for moving all my care into community when I move again early next year

    I am sorry you're struggling with the VA as well :(

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