I have been going a bit crazy with this for about 20 years now. I am not yet 40, for reference. So I was nearly killed in a SA around the time that this started and I do have TBI from that, but I have in the last five years really been pushing my doctors to help me with this.

I've been through two years of pelvic floor training, which didn't help or hinder the issue. I've logged the times when I needed to change my lower half clothing and there's no pattern. I've tried a pessary and anti-perspirant around my groin and upper thighs, but still need to change my clothing after a few hours outside running errands or just existing in the world. I have tried those sweatproof/leak proof undies but they aren't enough.

Earlier this year I had an mri of my pelvic region and it was unremarkable. That was preceded by ultrasounds before and after voiding my bladder and I'm not retaining anything. Very recently I had an mri of my spine and they found I have a few lumbar fractures that have healed, as well as too narrow of a space for the nerves. More physical therapy, but still no change (although at least I can walk reliably again!)

Fellow Femfolk, please help me out with suggestions. I'm so tired of bringing towels and extra sets of clothing with me just to hang out with friends or see a concert

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[–] 4 points 1 week ago (1 child)

hmm have you ever tried a menstrual cup? it would be interesting to see if it catches anything, so maybe you could tell if its coming from the vaginal walls or deeper in. to me it kind of sounds like excessive vaginal wetness, like maybe theres a nerve issue causing the aroused wetness response at random times. you mentioned you have some spinal damage which could be related. somewhere deep in the memory banks i seem to remember people getting weird genital symptoms from lower spine injuries, but i could be misremembering.

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  • [–] [S] 8 points 1 week ago* (last edited 1 week ago)

    I don't have periods, so I never thought to try that! I am going to try this as soon as I get paid, thank you so much!! 💜

    Extra edit: I've been diagnosed this summer with a separate nerve disorder that affects regulation (small fiber neuropathy). They had to take a biopsy to diagnose it, but given what else I've learned about it I actually think you're so spot on. Thank you so much for listening and being here 💜 I'll let you know in a few weeks if this was the answer

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