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[–] 19 points 6 months ago (1 child)

Every year I’m alive shocks me, I turn 40 in a few months.

I was born with cystic fibrosis at a time people with CF didn’t make it to 18, I was “middle aged” at 6. Then at 28 I died, was given new lungs and I’m now a new creation. Every year I’m shocked to still be here. I know it’s borrowed time but I’ll take all I can get.

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  • [–] 4 points 6 months ago

    Cystic fibrosis is one of the diseases that let's me still have hope in medicine's trajectory. I had a friend when I was 12 with it, and when there were some odd statements and my mother explained he wouldn't likely live past (I can't remember what they told me, maybe 20s), I took it hard. Now, that new wonder drug for it blows me away.

    Super happy that you're around.

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