Mine was found completely randomly - I went in for blood work because I was having stomach issues after returning from a trip and my GP wanted to rule out an infection. I was really surprised to learn it, because I wasn’t overweight nor did I have a family history! But it just happens sometimes, I guess. In retrospect - I was always very thirsty and had to pee much more than a normal human.
It’s been controlled for a while but unfortunately I now have some tingles in the feet, which developed a full year after I started medication and got everything under control. My neurologist believes it’s basically the delayed effects of the previously uncontrolled sugars. Fortunately, it’s been stable for several years since and seems to be every so slowly improving slightly.
I imagine I would have much worse neurological issues had I not discovered it until later.