Yupppp, which is what IMO made this whole thing extra tragic. The disease wasn't even that bad to begin with... definitely didn't necessitate literally doing the very first in-brain gene editing (which is why they needed much higher viral dose... which caused the death)
I have no clue where the family coughed up the $800K though. They don't seem to be the particularly rich type based on what the news report was saying, but maybe the parents did hide some information...?